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Author Topic: Seroquel XR  (Read 2084 times)

KittyVel

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Seroquel XR
« on: August 20, 2011, 12:26:01 am »
So my psychiatrist put me on Seroquel XR today.  I'm to start with 150mg for the next three days, and up the dosage every three days until I see him again in two weeks (to get it built up in my system for the follow up).

Does anyone else here take it?  What kinds of side effects did you experience?  About how long before bed should I take it?  How long does it take to actually start working on the symptoms of Bipolar?  (I've done a bit of research, but I want to hear about some personal experiences with it.)

Much appreciated, guys!
<3 Rest in peace, Christiana. I love you so much, and I miss you like crazy already. At least you\'re not hurting anymore...May you ascend. <3

Jubes

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Re: Seroquel XR
« Reply #1 on: August 20, 2011, 08:11:53 am »
Quote from: KittyVel;14235
So my psychiatrist put me on Seroquel XR today.  I'm to start with 150mg for the next three days, and up the dosage every three days until I see him again in two weeks (to get it built up in my system for the follow up).

Does anyone else here take it?  What kinds of side effects did you experience?  About how long before bed should I take it?  How long does it take to actually start working on the symptoms of Bipolar?  (I've done a bit of research, but I want to hear about some personal experiences with it.)

Much appreciated, guys!

 
My daughter  took  Seroquel XR too she was up to something like  350mg  a  day and to be  completely  honest it  made her worse. She was angry  all the  time and by angry I mean  chasing kids around the school having the  school in lock down  had to  call the police to remove her  angry. It  wasn't pretty. We  changed her  meds  now  she's on  Epival ( 375mg  in the  am, 500mg at bed time) and  Haloperidol (2mg  in the am and  at  bedtime) the  Haloperidol  made a HUGE difference  it's an  anti-manic  drug that  keeps her  bi-polar in check, her Dr. told me it's very  rare for her to  prescribe  it outside of  hospitalization but  nothing  else seemed to  work on her, a  normal  dose  for Haloperidol is  40mg  given during a  full blown manic state while  in hospital  so  her  dose is  fairly  low. My step-son  also  took  Seroquel xr  for about  2 weeks and  again  it made him angry to the point I took him off it and left a message for the Dr. that  I refuse to give  the child a drug  that is doing the  100%  complete  opposite  of what it's supposed to do!
Now that being  said  sometimes  these   drugs work differently  on  children than they  do on adults. I would  just suggest  watching your temperament while taking the  drug, if  you  are flying off the handle easier and  more often than  normal  then the  drug isn't working. Of course  my  children are  oddities when  it comes  to  finding  drugs that actually work  on them the  way they are supposed to but seeing as my step son who is  not  blood related to  my  daughter and  he   had the exact  same  reaction/side effects to  seroquel xr I  tend to think  in this  case it's the  drug  not  doing its  job the way  it was intended OR  the  drug shouldn't be  used  for  children.
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KittyVel

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Re: Seroquel XR
« Reply #2 on: August 20, 2011, 02:33:41 pm »
Quote from: Jubes;14283
My daughter  took  Seroquel XR too she was up to something like  350mg  a  day and to be  completely  honest it  made her worse. She was angry  all the  time and by angry I mean  chasing kids around the school having the  school in lock down  had to  call the police to remove her  angry. It  wasn't pretty. We  changed her  meds  now  she's on  Epival ( 375mg  in the  am, 500mg at bed time) and  Haloperidol (2mg  in the am and  at  bedtime) the  Haloperidol  made a HUGE difference  it's an  anti-manic  drug that  keeps her  bi-polar in check, her Dr. told me it's very  rare for her to  prescribe  it outside of  hospitalization but  nothing  else seemed to  work on her, a  normal  dose  for Haloperidol is  40mg  given during a  full blown manic state while  in hospital  so  her  dose is  fairly  low. My step-son  also  took  Seroquel xr  for about  2 weeks and  again  it made him angry to the point I took him off it and left a message for the Dr. that  I refuse to give  the child a drug  that is doing the  100%  complete  opposite  of what it's supposed to do!
Now that being  said  sometimes  these   drugs work differently  on  children than they  do on adults. I would  just suggest  watching your temperament while taking the  drug, if  you  are flying off the handle easier and  more often than  normal  then the  drug isn't working. Of course  my  children are  oddities when  it comes  to  finding  drugs that actually work  on them the  way they are supposed to but seeing as my step son who is  not  blood related to  my  daughter and  he   had the exact  same  reaction/side effects to  seroquel xr I  tend to think  in this  case it's the  drug  not  doing its  job the way  it was intended OR  the  drug shouldn't be  used  for  children.

 
Wow, that's scary!  I took one dose last night, and slept for a good 13 hours straight!  I could still sleep more, if I laid down.  But I haven't had any mood swings today, and I haven't felt all that anxious either.  I guess we'll just have to see how things go from here.  Thank you for telling me about your experience.
<3 Rest in peace, Christiana. I love you so much, and I miss you like crazy already. At least you\'re not hurting anymore...May you ascend. <3

hufflee

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Re: Seroquel XR
« Reply #3 on: August 20, 2011, 03:50:09 pm »
Quote from: KittyVel;14235
So my psychiatrist put me on Seroquel XR today.  I'm to start with 150mg for the next three days, and up the dosage every three days until I see him again in two weeks (to get it built up in my system for the follow up).

Does anyone else here take it?  What kinds of side effects did you experience?  About how long before bed should I take it?  How long does it take to actually start working on the symptoms of Bipolar?  (I've done a bit of research, but I want to hear about some personal experiences with it.)

Much appreciated, guys!


My best friend takes it daily. She was diagnosed Bipolar years ago. Her docs had her up to 450 mg (split twice a day), but in the last two years she has weaned herself down to 50mg about 30 minutes before bed. She doesn't have any side effects really, except now she can't sleep if she doesn't take it.  Also, NOT a good idea to drink alcohol and then take Seroquel. :) She did that once and it really messed with her head. I almost had to bring her to the hospital she was so freaked out.
When you change the way you look at things, the things you look at change - Unknown
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hufflee

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Re: Seroquel XR
« Reply #4 on: August 20, 2011, 03:53:37 pm »
Quote from: Jubes;14283
Of course  my  children are  oddities when  it comes  to  finding  drugs that actually work  on them the  way they are supposed to but seeing as my step son who is  not  blood related to  my  daughter and  he   had the exact  same  reaction/side effects to  seroquel xr I  tend to think  in this  case it's the  drug  not  doing its  job the way  it was intended OR  the  drug shouldn't be  used  for  children.

I would absolutely agree that it should not be used in children. It has made a world of difference in my best friends life, but she didn't start taking it until she was in her early twenties.
When you change the way you look at things, the things you look at change - Unknown
"This [the Irish] is one race of people for whom psychoanalysis is of no use whatsoever."
Sigmund Freud (My Irish heart is laughing)

KittyVel

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Re: Seroquel XR
« Reply #5 on: August 20, 2011, 03:55:02 pm »
Quote from: hufflee;14352
Also, NOT a good idea to drink alcohol and then take Seroquel. :) She did that once and it really messed with her head. I almost had to bring her to the hospital she was so freaked out.

 
This sucks, since I'm very much a party animal and I LOVE my liquor...>.>  But I'll certainly keep this in mind.  Thank you for telling me what you know!  :3
<3 Rest in peace, Christiana. I love you so much, and I miss you like crazy already. At least you\'re not hurting anymore...May you ascend. <3

hufflee

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Re: Seroquel XR
« Reply #6 on: August 20, 2011, 03:58:05 pm »
Quote from: KittyVel;14358
This sucks, since I'm very much a party animal and I LOVE my liquor...>.>  But I'll certainly keep this in mind.  Thank you for telling me what you know!  :3

 It could be different for you, just be careful. That was a few years ago, when she was still on her mega dose. Now that she's down to 50 mg a day, she can actually have a few beers and it doesn't really bother her, but she still can't drink hard liquor.
When you change the way you look at things, the things you look at change - Unknown
"This [the Irish] is one race of people for whom psychoanalysis is of no use whatsoever."
Sigmund Freud (My Irish heart is laughing)

KittyVel

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Re: Seroquel XR
« Reply #7 on: August 20, 2011, 04:00:45 pm »
Quote from: hufflee;14361
It could be different for you, just be careful. That was a few years ago, when she was still on her mega dose. Now that she's down to 50 mg a day, she can actually have a few beers and it doesn't really bother her, but she still can't drink hard liquor.

 
I'm always careful about drinking while I'm on meds, especialy if it's a new med.  Hopefully I'll still be able to have my fun.  XD
<3 Rest in peace, Christiana. I love you so much, and I miss you like crazy already. At least you\'re not hurting anymore...May you ascend. <3

Nehet

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Re: Seroquel XR
« Reply #8 on: August 21, 2011, 03:27:44 am »
Quote from: KittyVel;14366
I'm always careful about drinking while I'm on meds, especialy if it's a new med.  Hopefully I'll still be able to have my fun.  XD


Ditto on being careful.  

I say quit the alcohol for at least a couple of months while your body adjusts to the Seroquel.  Before re-introducing any alcohol, make sure you have an understanding of what is "normal" for you when you're on Seroquel.  Once you know what is normal, you'll be able to make observations when your headspace differs from normalcy.  At that point, you might want to try a small amount of alcohol, like a glass of wine.  Make sure you're doing it in a place while you feel safe and relaxed.   For example:  at home with a couple of good friends.  Don't do this at a loud, crazy party full of people you barely know.  Pay attention to how you feel.  If you have a bad reaction, then maybe Seroquel/alcohol don't mix for you.  The good news about quitting alcohol for a couple of months is you'll be used to not having it.  So, if you realize you can't handle it then it will be less of a big deal.

I have bipolar and take Seroquel for my condition.  I don't take the XR, just the regular kind.  So, not everything I say may apply.   Here is my experience, FWIW:  

The most troublesome side effects, for me, are weight gain and nasal congestion.  I take Diphenhydramine* (Generic Benedryl) every night so I can breathe.  That's no fun.  Nothing like having to take medication because you're having a bad reaction to your medication.   Hopefully I will never need to take medication for the side effects of my medication that I take to combat the side effects of my medication.

We could do this all day, but I'll stop now.

Seroquel is the only thing that seems to get me to sleep, so I'm kinda stuck taking it.  I try not to complain too much.  Some meds have worse side effects than a few extra pounds and eternal allergy meds.  Fortunately I have not had to give up alcohol, which is nice.  I like a nice glass of wine with ritual :)

*If you run into this problem and need an antihistimine, make sure this is the active ingredient.  Other common allergy meds like Claratin DO NOT  work.  Also, note that Diphenhydramine is not always sold as an allergy med.  It is also sold as an over-the-counter sleep aid, and for good reason (ZZzzzzzZZZzzzzz....).  If you have to take Diphenhydramine in addition to Seroquel, a reduction in Seroquel dosage may be necessary.  Otherwise you'll sleep 15 hours and still feel drowsy.
See, life is but a movement of eternal return.  Even Trees fall ~ Berlin papyrus 3024, (A man tired of life).

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KittyVel

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Re: Seroquel XR
« Reply #9 on: August 21, 2011, 11:44:46 am »
Quote from: Nehet;14510
Ditto on being careful.  

I say quit the alcohol for at least a couple of months while your body adjusts to the Seroquel.  Before re-introducing any alcohol, make sure you have an understanding of what is "normal" for you when you're on Seroquel.  Once you know what is normal, you'll be able to make observations when your headspace differs from normalcy.  At that point, you might want to try a small amount of alcohol, like a glass of wine.  Make sure you're doing it in a place while you feel safe and relaxed.   For example:  at home with a couple of good friends.  Don't do this at a loud, crazy party full of people you barely know.  Pay attention to how you feel.  If you have a bad reaction, then maybe Seroquel/alcohol don't mix for you.  The good news about quitting alcohol for a couple of months is you'll be used to not having it.  So, if you realize you can't handle it then it will be less of a big deal.

I have bipolar and take Seroquel for my condition.  I don't take the XR, just the regular kind.  So, not everything I say may apply.   Here is my experience, FWIW:  

The most troublesome side effects, for me, are weight gain and nasal congestion.  I take Diphenhydramine* (Generic Benedryl) every night so I can breathe.  That's no fun.  Nothing like having to take medication because you're having a bad reaction to your medication.   Hopefully I will never need to take medication for the side effects of my medication that I take to combat the side effects of my medication.

We could do this all day, but I'll stop now.

Seroquel is the only thing that seems to get me to sleep, so I'm kinda stuck taking it.  I try not to complain too much.  Some meds have worse side effects than a few extra pounds and eternal allergy meds.  Fortunately I have not had to give up alcohol, which is nice.  I like a nice glass of wine with ritual :)

*If you run into this problem and need an antihistimine, make sure this is the active ingredient.  Other common allergy meds like Claratin DO NOT  work.  Also, note that Diphenhydramine is not always sold as an allergy med.  It is also sold as an over-the-counter sleep aid, and for good reason (ZZzzzzzZZZzzzzz....).  If you have to take Diphenhydramine in addition to Seroquel, a reduction in Seroquel dosage may be necessary.  Otherwise you'll sleep 15 hours and still feel drowsy.

 
Thank you so much.  This is very useful information!  I really appreciate it!  *purrs*
<3 Rest in peace, Christiana. I love you so much, and I miss you like crazy already. At least you\'re not hurting anymore...May you ascend. <3

Livia Indica

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Re: Seroquel XR
« Reply #10 on: August 30, 2011, 11:51:26 am »
Quote from: KittyVel;14235
So my psychiatrist put me on Seroquel XR today.  I'm to start with 150mg for the next three days, and up the dosage every three days until I see him again in two weeks (to get it built up in my system for the follow up).

Does anyone else here take it?  What kinds of side effects did you experience?  About how long before bed should I take it?  How long does it take to actually start working on the symptoms of Bipolar?  (I've done a bit of research, but I want to hear about some personal experiences with it.)

Much appreciated, guys!


After the Risperdal quit working my brother was put on Seroquel, don't know about the "XR" part thought. It worked great for him, kept the voices in the background and he never had any side effects that I knew of with it.

KittyVel

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Re: Seroquel XR
« Reply #11 on: August 31, 2011, 11:44:44 am »
Quote from: Livia Indica;16616
After the Risperdal quit working my brother was put on Seroquel, don't know about the "XR" part thought. It worked great for him, kept the voices in the background and he never had any side effects that I knew of with it.

 
I'm glad it worked for him.  :)

My doc is gonna take me off of this stuff.  Too many side effects, and not enough results.  He wants to try Abilify next, and possibly a little something added to it if needed.  I will be seeing him later this week, so we'll get everything figured out then.  Thank you all for your replies!  They have all been very helpful!
<3 Rest in peace, Christiana. I love you so much, and I miss you like crazy already. At least you\'re not hurting anymore...May you ascend. <3

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